For those who don’t understand fibromyalgia

What should you know about fibromyalgia?

Fibromyalgia is not a new type of disease. Fibromyalgia was first described in 1815 by William Balfour, a surgeon at the University of Edinburgh. Over time, it was described as chronic rheumatism, myalgia, or fibrosis. Unlike diseases, syndromes like fibromyalgia have no known cause, but are a group of signs and symptoms that are unfortunately present in the patient at the same time. Rheumatoid arthritis and lupus are related syndromes.

Most of the symptoms and emotional issues associated with fibromyalgia are not psychological in origin.

It is not an “it’s all in your head” condition. In 1987, the American Medical Association recognized fibromyalgia as a real physical disease and a major cause of disability.

Fibromyalgia can be debilitating and depressing, which can interfere with even the simplest daily operations.

-What you need to know about me:

Understanding fibromyalgia

1. My pain    :

It’s not your pain, it’s not     my pain    . Fibromyalgia not caused by inflammation. It won’t help me with your arthritis meds. I can’t work because my body doesn’t stay that way. It is not the suffering that only exists in one part of the body. Today it’s on my shoulder, but it could be a foot tomorrow, or maybe it’s gone. My pain is triggered by signals that aren’t reaching my brain properly, probably due to sleep disturbances. It’s not well known, but it’s real.

2. What fatigue:

I don’t just feel very tired. I am so tired. I would like to be part of a physical activity, but I can’t. Please don’t take it personally. If you saw me shopping yesterday, but today I can’t stop cleaning the patio, it’s not because I don’t want to. I pay the price for stressing my muscles beyond their capacity.

3. My concentration problems:

All of us with fibromyalgia call these issues “fibro-fog.” I may not remember your name, but I remember your face. You may not remember what I promised to do for you, even though you told me seconds ago. My problem has nothing to do with age, but it may be related to trouble sleeping. I don’t have selective memory either. I don’t even have a short term memory for a few days.

4. My own clumsiness:

If I stop or run after the crowd, I won’t chase you. I don’t have the muscle control to do that. If you’re behind me on the stairs, be patient. These days I will take my life and each step one at a time.

5. My sensitivity:

I can’t stay here! This may be due to certain variables, such as bright light, very loud or low noise, odors. Fibromyalgia has been called a “condition that makes things worse.”

6. My intolerance is as follows:

I can’t stand the heat or the humidity. If I’m a man, I’m going to sweat a lot. Well, I mean, if I’m a woman too. And don’t be surprised if I go out of my reach when it’s cold. I also cannot tolerate the cold. My internal thermostat is broken and no one knows how to fix it.

7. Oh my depression:

Yes, there are days when I’d rather stay in bed, at home, or die. Severe pain is relentless and can     cause depression    . Your genuine interest and understanding can lift me out of the abyss.

8. Mon stress:

My body can’t handle pain well. If I have to stop working, work part-time, or delegate household responsibilities, it’s not because I’m lazy. Regular    stress    can make my symptoms worse and completely disempowering.

9. My weight is as follows:

You can be     overweight     or thin. It’s not my choice, anyway. My body is not your body. My appetite is affected and no one knows how to fix it.

10. My treatment need:

Don’t envy me if I need a massage every day. My massage is not your massage. Consider what a massage can do for my body if the pain in my leg last week is what I feel all over my body. Massage can be very painful, but it’s something I need. Massage can be helpful on a regular basis, at least for a while.

11. Well, hello:

If you see me smiling and working normally, don’t think I feel good. I suffer from chronic pain and fatigue, which does not cure me. You could have a good day, a few weeks, or even a few months. In fact, it’s a good day that helps me to continue.

12. The individuality of me:

Even those with fibromyalgia are not the same. That means I can’t tell you all the signs. You may have a migraine, hip pain, shoulder pain, or knee pain, but I don’t have the same pain as anyone with this condition.
Hope this helps you understand me, but if you still have any doubts about my pain, your bookstore, library, or the internet have some great fibromyalgia books and articles.

Author’s Note: This letter is based on conversations with women and men around the world about fibromyalgia. You’re not one of the 10 million people with fibromyalgia worldwide, but this can help healthy people understand just how devastating this condition can be. Please do not take the suffering of these men lightly. You don’t want to waste a day with their shoes or their body. Fibromyalgia is not something we choose to have, but if we do, we must reach a point where we accept the condition as part of our lives.

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